Today I weighed 467 grams or 1.06 pounds or 1 pound or 1 pound 0.7 oz
MUCH better day today. I was such a good girl after I got the surfactant and Nitric last night! Also I got the final results of my head scan and echo and both my brain and my heart are in great shape :) ...also found out from my blood cultures that I DO have an infection :) this is only a good thing because it means that 1. we are already treating the problem. and 2. my respiratory status is not decreasing, but my little body is require more oxygen because I am trying to fight off this infection. I was started on antibiotics yesterday morning so the doctors expect to see a response to them within the next 24-48 hours. My respiratory status has already improved a LOT since yesterday. They've been weaning my ventilator back slowly, and I am down from oxygen requirements last night of 90+ to oxygen requirements tonight around 60-70... I am a rock star :)
I had to get a new IV put in my arm today. The IV in my arm is where I receive blood transfusions, and medicines like my insulin and antibiotics. Because my blood vessels are so tiny, the IV's in my arm only last a few days so I will have to get new ones quite often. Today's was no fun, I had to get poked 5 times before we got the IV in a good enough blood vessel to tolerate flushing and therefore the fluids that will run through it. But Hope (my nurse) and Shannon (an ambulatory care nurse who is excellent at putting IV's in tiny people) were very gentle and good to me.
After my IV I had to have one more stick today to draw blood for another blood culture to be conclusive. It was quick and I tolerated it very well. Mom thinks maybe I am feeling a little better as a result of the antibiotics already as I was much more active and expressive today than I had been the past 2 days.
Here is my day of life 15 photo
hard to see through the plastic but I was being a sleeping drama queen :)
getting comfy... one foot out, fast asleep
worn out after an exciting day <3
My visitors today were:
Grandma Benjamin
Kadie Ritland
News from Mommy:
BEST. DAY. EVER... After a deep sigh of relief this morning that Reagan's repiratory status had improved, I knew today was going to be a much better day. Reagan and I spent much of the morning with my mom, chatting and hanging out. Then Matt got here after a while my mom took off, and the 3 of us had some quality family time. I could have watched Matt & Reagan all day! She was opening her eyes to check him out and he just sat there talking to her, telling her how sweet and wonderful she was, enough to melt anyone's heart... then Kadie Jo came to visit. It was so wonderful to sit with her and have an honest and normal conversation (okay mostly snarky, sarcastic, and sassy... but if you know us you understand :) Then came the best part of the day... after watching poor little Reagan get a new IV line in, have blood drawn, in addition to having her regular labs drawn... the happiest moment of my life so far was about to happen and I didn't even know it!
Myrna, Reagan's nurse said it was time to change her bedding and someone would need to hold Reagan while she made the switch... "and it might as well be Mom" My heart stopped, I've been waiting 15 days (and what feels like my entire life) to get to pick up our little girl and I figured I would continue waiting for a while. With the help of another nurse, we gently picked her up, careful to keep her flat, then the nurse said, "go ahead, cradle her in your arms and love on her" I got to give her kisses (one from me, one from her Daddy) and just snuggle her, FINALLY!!! The whole ordeal lasted probably less than a minute and a half and it was tough to put her down, but I can't even attempt to put into words how amazing it was to pick up our tiny little one and hold her. She even opened her eyes while I was holding her :) The only thing that could have made it more perfect is if Matt were here to give her kisses too, but now that we know we can help with things like that, he will have his turn next and I can't wait to see it! I have no words to describe how wonderful and amazing it was (me, the one who always has lots of words, I have none :) just a big ole' heart full of love tonight <3
It really reminded me to celebrate ALL of Reagan's little milestones and our milestones as a family. Today was a big and busy day in the life of such a tiny baby. She continues to astonish us with her resilience and beauty and we are SO lucky to get to witness her progress and her big moments. And it reminded me of one other thing... I AM A MOMMY! Seriously how great is that!?
Lots and lots and LOTS of LOVE, <3
Em
P.S. I realize I may have gotten a little carried away with the :) and <3 tonight... but really... can you blame me!?!? :)
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